By admin on May 01, 2009

Response to Cheryl Miller’s “Who’s Your Daddy” Article in reason.com:

http://reason.com/news/show/130845.html

My name is Karen Clark, I am from the United States and was conceived through the use of an anonymous sperm donation back in the 1960’s.  I would like to comment on Cheryl Miller’s reply to Damian Adams’s, a donor conceived man from Australia , rebuttal to her article “Who’s your daddy?”

Cheryl Miller emphasized a fear of conception method disclosure as an argument against identifying ‘donor’ (biological father) information disclosure. Quote: ” Indeed, as I noted in my article, the right to information does not necessarily lead to greater openness. A mandated registry might win offspring the right to know their donor’s identity, but if it means future parents are less willing to disclose their children’s status, it won’t be much of a victory.”

I strongly disagree with this logic/reason. First, I would like to know what facts and research she based this assumption on?  It could equally be argued that parents would be less likely to disclose because they DID use an anonymous ‘donor’ out of fear that the child will be upset, confused or feel rejected because their biological father was not open to contact from them.

Further, according to CNN (http://www.cnn.com/2009/LIVING/wayoflife/04/08/out.of.wedlock.births/) more than 80% of the California Cryobanks clients are single or lesbian women. Obviously, disclosure is not an issue in these situations when the “Who is my daddy?” question is inevitably asked of them by their children. The argument that open identity ‘donors’ might create non-disclosure (for possibly a very small minority of families conceiving through the use of ‘donor’ gametes) is just not a strong enough argument to continue institutionalized anonymity.

While Cheryl Miller notes that would-be-parent’s desire for a child is not a “whim”, I equally argue that a person’s desire for identity and meaningful connection to half (or all) of their genetic roots and ancestry is not a “whim” or mere “curiosity”. This is just as much a natural biologically rooted and emotional/psychological predisposition as a desire for a child. Not all people feel the desire for a genetically related child to fulfill their needs, just as not all people feel the desire to know the identity of their biological father and/or be allowed to have meaningful connections with their genetic roots and ancestry to fill their needs. Each individual will feel differently but one should not trump another.

Some like to argue that these disconnects happen all the time in other unintended ways, but this equally does not justify giving professionals, institutions and the gamete industry the legal power to withhold information from the very people they help to create.

The Hippocratic Oath, “Do no harm”, needs to apply to all interested parties in these complicated family formations. Let’s not forget that this should and must, first and foremost, apply towards the very people (and their children) that they are all intentionally collaborating together to bring into this world – People who might have a deep biologically rooted, emotional and psychological need to know this information for their sense of personal identity, belonging, connection and emotional well being; not only for themselves but for their own children as well.

Who is to say that biology does or doesn’t matter in our personal definition of family and identity? Let’s try to move forward in a way that that respects everyone’s choice while putting emphasis on the yet to be conceived offspring’s anticipated consent.

And another:

Cheryl Miller’s “Who’s Your Daddy?” (February) suggests that infertile couples are being denied the chance to procure a child through a financial transaction because of the demands of offspring already created in this manner. But the assertion that eliminating anonymous donations and creating registers in Europe and Australia have resulted in donated gamete shortages is a scaremongering propaganda campaign to garner sympathy and attract more donors.

Donor numbers around the world had been dropping for many years prior to these changes. South Australia, which guarantees anonymity through legislation, has seen a reduction in donations since enactment. The state of Victoria had an increase in donors the year after banning anonymous donations and implementing a centralized register. U.K. clinics that undertook active recruitment campaigns shortened their waiting period drastically while those not recruiting complained of shortages. Donor numbers in New Zealand increased after anonymousdonations were ended. The U.K. DonorLink register has been operational only since 2004, not 1995 as reported, making the link between registers and shortages in this period rather tenuous. Donor shortages can equally be explained by the attitudes of men as opposed to any imposed restrictions.

Research to be published in Sterility and Fertility shows that 87 percent of adult donor offspring wish to know their biological father’s identity, 62 percent want to at least meet him once, and 26 percent want to establish a relationship with him. Paternal kinship is a vital component of the lives of donor-conceived offspring, and it should not be subverted to cater for the whims and desires of the infertile.

Damian Adams
Adelaide, Australia

And my two cents:

The donors that you say were “spooked” by the New Scientist article about a teen discovering his donor’s identity through DNA testing should have already been educated and counseled by the sperm banks to the fact that anonymity can no longer be guaranteed. Sperm banks should never be promising anonymity, as DNA testing, as well as Google have made guaranteed anonymous sperm donation a thing of the past. I know this because I hear quite frequently from people who have easily figured out who their donors are with the non identifying information given to them in the “donor profiles” they receive when they purchase the sperm.

I speak to donors all the time who would be willing to meet their genetic offspring, but hesitate because they are not sure of the law and how it would affect their rights and responsibilities as a biological parent. The donors, parents and donor conceived people on the Donor Sibling Registry are working together to hopefully change the existing laws to better protect the children being born, by promoting early disclosure, by using only willing-to-be-known donors, and promoting pre-pregnancy third party counseling for all parents and donors. It is important for parents to know the importance of honoring a child’s curiosity and the importance of early disclosure. It is also important for the donors to know that there are currently no accurate records kept on how many kids are born from any given donor and that many of the kids born from their donations may indeed want to know who they are.  We would also like to see the donors legally protected so that they can feel more comfortable coming forward to make contact with their genetic offspring.

There is a lot of work to do, and having this public discussion is a great first step!

Wendy Kramer


By admin on April 20, 2009

Here are current numbers for anonymous vs. open donors that each sperm bank has in their current catalog. PRS, TSBC and Xytex being the most progressive. Fairfax, CCB and NECC unfortunately still promoting anonymous donors as the bulk of their catalog.

PRS
95 Willing to be Known 88%
13 Anonymous 12%
108 Total

TSBC
49 “Identity-Release” 64%
27  Anonymous 36%
76  Total

xytex
81 Willing to be Known 61%
51 Anonymous 39%
132 Total

Fairfax
39 Willing to be Known 21%
144 Anonymous 79%
183 Total

CCB
56 Willing to be Known 20%
228 Anonymous 80%
284 Total

NECC
35 Willing to be Known 20%
139 Anonymous 80%
174 Total

TOTALS:
355 Willing to be Known (37%)
602 Anonymous (63%)
957 total available donors on 4/19/09


By admin on March 21, 2009

If you’re a member of Facebook, please join the official DSR Facebook group which Ryan just created at:

http://www.facebook.com/group.php?gid=70522174991 . We want to provide as many opportunities for DC families and individuals to find us as possible.

Also, in September of 2000, the DSR started as a Yahoo Group- today while all searching and finding happens here on the actual DSR, we still run this Yahoo group for all discussions and chatting.  http://health.groups.yahoo.com/group/DonorSiblingRegistry/