By admin on April 30, 2016
 “We cannot know who we really are until we know the stories of our lives.” —Daniel Mendelsohn in The Lost: The Search for Six of Six Million

“Do you think we really need to tell our child?” This is a question I hear often from people considering or pursuing egg or sperm donation. Many feel beaten down by years of infertility and want to move on to parenthood feeling confident and secure in their authenticity as parents. They fear that conversations with their children about donor conception will undermine their relationships with these long awaited, cherished children.

For many years, my response to the question was always the same. I took a deep breath, went looking for my most compassionate voice and tried to gently tell them why talking with their child was something they needed to do. I’ll admit that it probably came off as a bit of a lecture, with me cautioning them on the hazards of secrecy. Somehow people took note of what I said and as time went on, they began to come back to me with accounts of the conversations they had with their children. These accounts were sweet, poignant, wise, funny, tender, playful and inspiring. They were never sad or mad or ugly in any way. For me, a light bulb went off: the very conversations that parents feared most were actually not-to-be-missed opportunities.

Shortly after the light bulb went off, I consulted an old friend who is a distinguished child psychotherapist. I said nothing to her about the questions parents ask nor of my responses to them. I simply asked her if she might have any advice to someone who was a parent through donor conception. Without missing a beat she replied, “The parents need to love the story and their children need to know that their parents love the story.”

So how do parents love the story? Many of you come to donor conception after years of disappointment. Your efforts to start or expand your family may have included several failed IVF attempts. Along the way, you’ve been told you have “bad eggs,” or you are “a poor responder” or you “failed the cycle.” It is hard to come to donor conception feeling great about yourselves and about the process. However, it is important to remember that there is another side of things: your future child’s perspective. Try to remember, as you move forward, that your child does not have to experience loss.

The story that you will tell your child is the only story your child will know. You are the authors of that story and you have the opportunity to write it well and tell it proudly. Yours can be a story of resourcefulness and resilience, of dealing with disappointment and moving beyond it to a very positive place. You can pack into your story several important life lessons about how people can cope with adversity, compromise, collaborate and most important, grow their family. As author Bruce Feiler tells it in “The Stories that Bind Us” (NY Times March 2013), your oscillating family narrative offers your children “a strong intergenerational self.” Feiler offers up compelling research that testifies to how being strongly rooted in one’s family history, with detailed knowledge of that history, serves young people well, especially during their teenage years. They have “the security that comes from knowing they are part of something bigger than themselves.”

I encourage people embarking upon donor conception to make decisions that they feel will set the stage for great conversations with their future child or children. For some this means having a known donor or one who is willing to be identified. For many it means joining the Donor Sibling Registry and being able to say to their child, “I knew this might be important to you.” For all, it means chronicling the story from the beginning and preserving all the memories that make the story. As author and professor Joshua Gamson writes in Modern Families, “Stories help things make sense. They put things in an order. This is how it happened. They are also the stuff from which identities are built. Creation stories, in particular, are about selfhood. In telling the story of our becoming, as an individual, a nation, a people.”

And so, to circle back to where I began, yes, for sure parents “need” to tell their children the truth about their origins. From my vantage point, this is an opportunity, not a burden. All parents do right by their children by rooting them securely in their family history. Donor conception offers a helpful reminder to parents that “we cannot really know who we are until we know the stories of our lives.”


By admin on March 12, 2016


Selling your sperm or eggs means much more than paying for a spring break vacation. 

This kind of irresponsible advertising (from a NY sperm bank*) only goes to show the lack of proper education given to prospective donors about decisions made now for a quick buck — decisions that can affect them (and their families) for the rest of their lives.

If you are considering selling your sperm or eggs, are you thinking about your medical history, past, present, and future?

Would you be willing to provide ongoing current medical information with respect to yourself and your immediate family? As a “donor,” it is important to consider the ongoing ramifications for any children conceived who share your DNA. If you sell your sperm this year, the sperm may be sold for many years into the future, and potential mothers may keep that sperm for many years after purchase, attempting to provide their children with full biological siblings. Several families on the Donor Sibling Registry (DSR) report that they know of half-siblings more than 20 years apart in age. Egg donors who donate to the new egg banks are now facing similar situations.

Should you or a member of your immediate biological family develop a health or medical issue following your initial completion of the donor interview, it would be essential that you provide this information to the sperm bank or egg clinic/agency/bank and post the information (anonymously if you’d like) on the DSR website, which enables donors, recipients, and offspring to make mutual consent contact, to meet each other, and also to share and update medical/genetic information.

Published research has revealed that 97% of egg donors and 84% of sperm donors have never been contacted to update their medical records, while 31% of egg donors and 23% of sperm donors report that they, or immediate family members, did have medical/genetic issues that would be important to share with families.

It’s not just your looks, intellect, or athletic abilities that might get passed along. Susceptibility to disease is also often inherited. For many years after your original donation, children who share your DNA may develop medical and health concerns that can only be properly addressed with your updated information. Conversely, it might be crucial for you to know about any medical issues reported by families, as you may someday have children of your own. It is also important to note that the accuracy of the medical and health history you provide to the sperm bank or egg clinic/agency/bank is crucial to the potential parents reviewing that information. Certain conditions carry genetic components that are not readily tested for, and your accurate information is vital for proper screenings, testing, and preventative care.

If you have children of your own, or plan to...

Have you considered the possibility that in this small world your children may encounter biological half-siblings?

At the present time, sperm banks and clinics do not keep, nor are they required to keep, any record of live births resulting from any specific donor. What this means for the children born with your DNA is that they may be many in numbers. Currently, the largest group of half-siblings on the DSR is around 200. The children you have now, or may have in the future, may meet your biological children born from your donations. Random meetings among half-siblings are regularly reported on the DSR. Honesty is essential. Before you donate, consider your willingness to be forthright with your children.

Are you planning on donating anonymously?

If you are planning on being an “anonymous donor,” it is important to understand that because of advances in DNA testing and Internet search engines, the likelihood of your remaining “anonymous” in the future is growing smaller. Have you considered what your reaction will be if you are “found” by your biological children in the future? The children born from your donations may be curious and will want to search out their ancestry, medical backgrounds, and genetic roots. As noted above, many donors have more than 20, 50, and even more than 200 biological children.

Have you considered the possibility that you will be contacted in the future, even if your donation is anonymous? How would you respond if, one day in the future, you were asked to meet with your genetic offspring and their parents? You will need to think about the fact that this could be potentially disruptive to any family that you may have formed in the traditional manner.

With this in mind, would you consider registering on the DSR so that urgent information can be passed back and forth right from the start?? 

Please consider...

Please consider how you might feel about your donation in the future. It is likely that more than one child will come to exist as a result of your donations. These children are genetically yours; in fact, they may one day have children of their own who will be your genetic grandchildren!

Take a moment to imagine how donor offspring might feel. Many will wonder about where they got some of their physical characteristics. Or wonder about where they get their talents and personality traits. Many are extremely curious about genetic family history and ancestry. And many feel a deep longing to connect with and to know their unknown genetic parent.

Imagine your reaction if your genetic offspring found you and expressed a strong desire to connect, or if they needed a lifesaving bone marrow transplant. Please consider these issues carefully as you make your decision on whether or not to become a donor. Your actions today may have an incalculable effect on the future.

Your donation is much more than a transaction with a sperm bank or egg bank/clinic/agency.

*In 2015, this sperm bank gifted $100,000 to the ASRM, the organization that makes recommendations to the reproductive medicine industry. The fox watching the hen house?
http://www.manhattancryobank.com/resources/media-press/


By admin on February 10, 2016
I received this today from a former egg donor. If you used the Cooper Center for IVF between 1997-1999, or know anyone else who did, please see the postings for this clinic on the DSR. Contact Wendy if you need more information.
 
Hi Wendy, 
 
I have been a member of the registry since 2004. I donated eggs in 97, 98, and 99. ​ ​
 
I am concerned about the children that may have resulted from those cycles. I have been diagnosed with Autosomal dominant polycystic kidney disease (ADPKD). I have 4 children; 2 have the disease. One does not and the youngest has not yet been tested. He is 15 and conceived from the cycle in '99. I kept 3 eggs and donated 20.
 
I contacted the clinic immediately after I found out. They completely accepted the information but did not give me any real Indication that they would relay the information.
 
I lost my mom in 2005 to aneurysm as a result of the disease. 
My niece had aneurysm surgery 4 years ago. She was the youngest diagnosed with serious complications. 
My sisters are both in renal failure waiting for transplants.